I for Invasive & Insurance #A to Z Challenge

DISCLAMER

Infertility treatments are very very invasive I must say. When we decided we wanted babies, and nothing worked the normal way, we tried the all the non-invasive treatments like Ayurveda and Homeopathy when those were exhausted,I had no choice but to go the Allopathic way , I am was darn scared because I knew it would be very invasive. We being the google generation , we just google every darn thing. Everything I read was all about tvs-scans, HSG test , hysteroscopy and much more, the list is never ending, and every time we go for check ups, tvs scan is a must, or the RE wont know whats happening with the reproductive system.

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The above tests are just the beginning, once your a part of either IUI or IVF roller coaster ride, its even more invasive, now I am just used to those invasive scans, if my RE does not ask me to get undressed from my lower part I will be worried, and will be thinking why she is not scanning today, nah nah after speaking to me the nurse tells me to undress and dang the scan is done, its not painful but its obviously uncomfortable. Invasive in the part of infertility life.

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Insurance I wont talk much, but here in India insurance is not covered for a single infertility issue, we have to pay everything from our pocket and these treatments are very expensive. Every time my RE suggests tests I need to think how much it might costs and when should it be paid, its very draining mentally, physically and financially , dint I say you need to be a warrior to go through infertility treatments.


PS:I am not a doctor, these are just my findings, my experiences and my infertility warrior friends experiences, I am half doctor myself because we go though so much,sometimes I feel I know my diagnosis better than my RE(Reproductive Endocrinologist). Hope these posts make some sense for people who are not a part of this journey.This post is a part of #AtoZchallenge2018.

Yet Another Year & IVF – Part 1

DISCLAIMER

……passes by and no baby, at-least I thought I will be carry my miracle during my birthday none of that has happened. Tomorrow is my birthday and nothing has happened, only thing that has happened after my birthday last year is two pregnancy announcements,three baby showers (two of them are my close cousins and one is my brothers wife), HSG test, three failed  clomid cycles (one cloimd cycle was admist my SIL’s baby shower, where I was the one running around), Hystro-laparoscopy.

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I was suggested IVF after hystro- lap, I waited for the reports which is a long story and the  the never ending drama, until I could proceed with IVF, after everything was sorted out I am still waiting for AF to arrive so that I could start IVF procedure. In one of my previous post I was cribbing that I might be on injections on my birthday, now that also has not happened. I don’t know why God is punishing me I am really emotionally drained , physically I don’t even want to talk.

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I am done taking Primolut N tab for three days , three times a day. I finished taking the last tab, last night now waiting for the period to start soon, so I can start IVF soon,  also 90 percent its going to be FET cycle , so waiting aging but I am ok for that. RE  told that I might get period within 7 to 9 days, but I read in net that some get withing 2 to 3 days so hopefully AF will arrive soon by Thursday or Friday and I can start IVF procedure.I am seriously tired of waiting.

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On another note my dads’s fine its almost more than two weeks after his surgery and he is fine, all his reports have come fine, which we got to know only yesterday  , that’s a big big relief or I would be worried and got stressed with my dads health during IVF procedure, so I think God knows what to do and when to do, so maybe I just need to believe in him.Hopefully my next post will be about AF arriving and starting with IVF :).

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What next ?

What next is the biggest question I have at this point of time in my life,even though I know  that my doctors  have told IVF is the only option I have right now. I am also preparing for IVF  mentally, Physically and financially, but this waiting game is frustrating.I wonder how people cope with this waiting game, especially when you want something the most but its delayed due to so many factors which are known and unknown to us, so it  makes the waiting more worse than anything in life.

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I met my gynecologist yesterday after a week to remove my stitches, I had to go on Saturday but could not go due to some other reasons.Removal of stitches was ok near the abdomen but near my navel it was a bit painful only for few minutes, it was done by some junior doctor. later my gynec came to meet me where I was lying down after removal of the stitch. As I had told in my last post that both my RE and gynec had discussed that if my right tube is blocked according to my Feb HSG  report and if my right tube was causing any problem for conceiving than to remove the right tube.

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My gynec decided not remove my right tube since both my tubes are fine, only its blocked that’s it, so she decided to tell my RE its not necessary to remove the tube and it wont have any bad effect during IVF.

My meeting with gynec went well, she told  me that my tubes are fine and it can open in future and she spoke to my RE when I was on operation table that its not necessary to remove the tube so I am a bit relived, so my tubes are fine and in my uterus, also I have heard that tubes  usually closes and opens depending on our diet or our Karma or our luck. One of my cousin conceive after eight years on her fourth IVF and conceived naturally next one within two years, her tubes had opened and it was miracle baby two for her.

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OK now if you read until now and wondering why I have that question on what next ?when I know it is IVF, but they have sent my some blood sample,endo lining and smear and what not I  don’t know for testing some

AFB  BACTEA Culture

AFB Smear

AFB Culture 

AFB Culture (Identification)

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Then something specimen source  and smear is sent by tissue and that result is Acid fast Bacilli NOT SEEN its written in the report so that’s fine I think.I know I should be stress free and talk to  about these to my doc but I cant wait. I think here in India they do this test to check to find out genital TB because it will be difficult to conceive or  during IVF embryo wont implant due to TB (this I read in some trying to conceive forum, written  by somebody who  had done these tests during there treatment for infertility)so if its positive they give treatment for three or six months and then when its cured they find out by endo biopsy and start IUI or IVF whatever next. So I will be meeting my gynec to get my report on AFB culture and then will meet my RE to start IVF maybe form October or November. So please pray for me all is fine and I can start with IVF soon.

 

 

Hystero-Laparoscopy

 

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I met my doctor again on Wednesday, did some more tests Echo and X ray, last week too she had told some blood work, met anesthesiologist too,  all reports are fine, and I am told I am all good to go for the surgery. I have mixed feelings. Hystro-Lap is scheduled on Monday.

 

Hystero-Laparoscopy is done under anesthesia  so I am ok with that, but my doc told if I have any problem in my uterus they will do Laparotomy and clear it off, but I am worried and hopefully everything will be finished with  Hystero-Laparoscopy. I am really worried what if it is laparatomy. I am just very nervous, because its a big surgery is what I have heard and read.

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Update:- Today the junior gynecologist called me,she told that since my right tube is blocked according to my HSG report, they will check again during Hystro-lap, if its really blocked, they will try to rectify it, if is really bad and not helping me for conception(this I really did not understand) means they will remove my right tube, that’s what my gynecologist and RE have discussed, the junior gynecologist told me.

The junior gynecologist told me that she did not want to shock or frighten me by telling on Monday morning when I go for the surgery, so she had to tell me about my right tube.I asked her about Laparotomy she told me  not to worry, only in the rarest of rarest case Laparotomy is done and not to worry. In case if I have any problem at all then they might go for it  or else most of the time its  not needed at all, they just want my consent before they put me under anesthesia. They suggest everyone who’s goes though hystro-Lap before hand to be ready for Laparotomy, but that’s makes anyone nervous right.

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Almost all the people I know get pregnant so easily , and here I am doing so many things even before and struggling  to get pregnant. Suddenly with all these invasive methods I get really very scared and feel like stopping everything, then I feel that stopping without even trying means giving up totally, how can I leave all this when I have come this long in this journey, its very exhausting  and frustrating journey.

I am just too confused , afraid , feeling low and lonely. I just want to leave it all to God and trust him and that’s all I can do.I just pray  to God to give me the strength that’s all.   If  anybody has done Hystro-Laparoscopy / Laparotomy let me know, how it was for you and what  was the results positive or negative , whatever do let me know.

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Sometimes I wonder what is happening in my life……………

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PS; First of all I want to tell you all that my brothers wife gave birth to a healthy boy baby on Tuesday 29th august , I am very very happy for them. The baby is so very cute I cant take out my eyes from him.

Updates and Rants …..

After loads of emotional posts,I wanted to post about my consultations with  both the RE and my Gynecologist, but in India you just get stuck in the daily Indian dramas. Here it was one of the big festivals  In India on Thursday and Friday. It is the Ganesha Chaturthi so was busy shopping for festival and meeting doctors too.Then  later so many other things happened.

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On Friday I wanted to write, but again my  pregnant SIL (sister in law, brother’s wife) was crying in pain , she has some gal-bladder stone and it has aggravated due to hormonal changes during pregnancy, so we were very nervous, my bro took her to hospital , this is the fourth time she is admitted in hospital, she is fine now, luckily the baby is fine. She conceived exactly 2 or 3 months after the wedding , she is 9 years younger than me (she is 24 years). She has become pregnant without much effort so she is not bothered, she was asking the doctor to do cesarean and to keep the baby in incubator because she was in pain due to the gal-bladder stone, this was  when she  was just eight months (now she is 8.5 months), the doctor scolded her and told the baby will be pre-mature if we do that. She just wants the baby out that’s all not bothered about its well-being, now she is 36 weeks  so doctor has told to wait until 38 weeks.

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Here we are struggling to get pregnant and people want to just finish it off like it is some unwanted chore, they have got it easily so they don’t know the value, God why do you do this……

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OK now my reports ,got mine and BH’s blood reports and his SA result too. They even wanted to get us cleared with HIV, HBSAG, HCV, VDRL, Rubella( Rubella was only for me) etc all was clear and perfect for both of us, this is a routine check up here in India  when we first go to meet RE.

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MY REPORTS

Mine is Arcuate Uterus, this info I knew from my HSG reports itself.I read it fine , and no problem for conceiving, but I would like to know from first hand experienced person, who has arcuate uterus.

TSH – THYROID, PROLOCTIN ,AMH (EGGS) – 4.93 NG/ML , FSH all good, all other blood work reports are fine.

BH’s REPORT

SA – good count, motility and morphology is on lower side.

So both RE and gynecologist have suggested Hystro-lap/Hystroscopy after I get my period. Then later RE told we can try two  IUI’s and then later IVF cause I am in early thirties.

Has anyone done Hystro-lap, do let me know about the procedure and how it has worked for you.

 

HSG test in Bangalore

I was and I am all always scared of HSG   hysterosalpingogram test. So finally after six or seven months of natural try, taking tabs , some scans, blood work SA for BH nothing worked, so before going clomid and TI (timed intercourse). My doc suggested HSG test to be done either from day 6 to day 9, I told I am darn scared but I had to do it.

My doc suggested to consult the best radiologist  in Bangalore, but that radiologist  was not giving anesthesia , so searched all the hospitals in Bangalore finally zeroed on two hospitals, read reviews and finalized one hospital which is one of good hospital in Bangalore.

The hospital was Gunasheela Hospital, Jayanagar. Since I am not the regular patient there, there was loads of confusion. I was first giving a mock register number, then they told  me to get some unwanted blood work, even though I had almost blood work done but they wanted me to get it. So I gave the blood for test , then they told me to come next day to meet the anesthetist for checking whether I can take  anesthesia or not.Next day went to the meet the doc he cleared me for taking anesthesia.All my reports are fine so  I was asked to come on day 7 (or I told that I would want it to be done on day 7)and they  gave me some tabs to take on the test day early morning , take only coffee and biscuits and not to eat anything until the procedure,and the test will be done by 12 noon.

I went to the hospital on day seven by 10 am, paid the amount then they gave me a hospital gown to wear.Then they took me to something like operation theater  , there the anesthetist spoke very nicely , as he was speaking they had give IV by then and later the  doc injected something and I lost conscious then after 10 mins or soo they woke me up and told that the test was done, even after the test it was paining, it was like bad period cramps and was bleeding a bit, and  I was not fully conscious.

After maybe two or three hours I felt better, they told me take water, then  they told me take juice after half an hour , then again after half an hour some light food like idly. Then when I felt better they checked me told that all is good and I can go home. It was a long tiring day and HSG was over finally.

Ok my  HSG results, right tube blocked and left tube fine, so one tube is blocked.

Cost – 3000 rs for blood work, 500 rs for  meeting anesthetist  and 6000 rs for HSG test.I felt it was too much, if you are their regular patient it costs less I guess.

PS: Gunasheela Hospital  its very crowded , they dint give any written test report only x-ray report , my gynecologist had to interpret by herself and she gave the report to the in-house radiologist  and he gave interpretation by seeing by x-ray. So for all the amount I paid,  I was not satisfied. Only thing was they were doing the test by under anesthesia.

After HSG I did three clomid cycles I have written here, now my doc is suggested get laparoscopy before further treatment. I will be meeting a new RE (Reproductive Endocrinologist ) suggested by my doc/Gynecologist  then we will decide what and when. It’s a long long journey.

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TTC and life around IT….

My TTC journey you can from here.In July  19th 2016 when we decided to meet the recommended gynecologist, first thing that came to my mind was all the invasive check ups because I know these check ups and dint pursue many time in the past, but this time I had to do it. I am already in early thirties , and I just wanted my baby, so I made up my mind to be stronger . Finally when we met the doc, and she got to know about our ttc journey , she asked me and BH to get some blood work done and SA (semen analysis).

Our results were out, mine all are fine only LH was on lower side. BH’s SA counts were good , morphology was good but motility was on lower side. I was told to take cetaptin   500 mg two times a day  and folic acid one tab per day , some mineral powder for BH  and doc told me to try naturally for three months if it not worked we ll see what can be done next.

Nothing happened in three are four months, went back to doc she told me to just do follicle scan  without medication to check whether I am ovulating naturally or not and SA  for BH to know how it is now after three months, so that she can decide what can be done next. On day 13 I went scanning  had many small follicles ,then went for alternate day scans but the growth was very slow. Then I waited to get my period which was delayed and got my period exactly after 60 days that’s two months sigh.BH’s SA this time were same again little lesser compared to last time but not much difference.

Met my doc  after AF (Auntflow/period) she told to get HSG test between day 6 to day 8, one of the most dreaded test, I was scared .I told my doc that I was scared of the test, she told if I am scared then we ll have to do Laparoscopy, so she told its better to first take HSG then we can decide what can be done next. So got HSG test on day 7 , will write in detail about the test.

According to HSG result my right tube was blocked  and my left was partial spill or maybe it was fine  not sure.From next cycle I was put on clomid 50 mg from day 2 to day 6. My first  cycle failed, next cycle was also 50 mg clomid which failed again. Third cycle I was on 100 mg clomid it failed too.

In all the cycles my follicle grew nicely  up to 20 mm to 24 mm and ruptured/ovulated on my own on day 17/18, only second cycle I was very unwell and I ovulated on day 23 I think so, but I did ovulate on my own in all cycles. Its a long tiring journey.

Next what, will update soon.

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